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Andrew ("Drew") I. Batavia (June 15, 1957 - January 6, 2003) is a disabled rights activist, health policy researcher, author and professor at Florida International University who, at the age of 16 years, suffered a spinal injury. He obtained JD from Harvard Law School and MS in health care research from Stanford University Medical School, and as a White House Member (1990) working under Attorney General Dick Thornburgh to draft regulations for Americans with Disabilities Act. In 2002, he founded Autonomy, Inc., to represent disabled people who wanted choice and control over their lives, including the choice to end it for those with severe disabilities.


Video Andrew Batavia



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Batavia was born in Beth-El Hospital (now Brookdale) in Brooklyn and lived in the Bensonhurst, Italian-Jewish neighborhood, on the 80th street until he was eight years old. In 1966, the family moved to Yonkers, New York, where he attended the fourth grade at Public School 21. Then he attended Lincoln High School and in May 1973, at the age of 15, completed the Yonkers Marathon.

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Car accidents and physical rehabilitation

In the summer of 1973, at the age of 16, Batavia was employed as a camp counselor for children with intellectual disabilities at Camp Lee Mar in Lackawaxen, Pennsylvania. On a day off in early August, he went to Monticello with two other counselors. At the end of the day, they rode back to the camp. The car that picked them up fell, and Batavia flew through the windshield, breaking his neck. He was transferred to Wayne County Memorial Hospital in Honesdale, Pennsylvania, but after initial treatment, he was transferred in mid-August to Montefiore Medical Center in the Bronx, where his spinal cord injury (at C2-C3 level) could be better managed. In 1974, after his acute treatment at Montefiore, he was treated for physical rehabilitation to the Rusk Institute of Rehabilitation Medicine in New York City for almost a year. He was then fired in a wheelchair to his home in Yonkers, New York, where he completed his final year at Lincoln High School (1974-75), and was elected his senior vice president.

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Higher education

In high school graduation, Batavia was accepted at the University of California, Berkeley, which has a program for disabled students. After a year, he moved to Strawberry Creek College, a smaller division of the university, offering a more personal educational experience. The following year he moved to UC Riverside, which offers a wheelchair accessible campus, and majored in economics and sociology. After receiving BS at Riverside, Batavia studied at Harvard Law School for two years. The following summer, he was apprenticed as a partner in Wall Street Fried, Frank, Harris, Shriver & amp; Jacobson. After two years at Harvard, he took time off to earn an MS in health care research at Stanford Medical School (1980-1983), where he studied under Victor Fuchs and Alain Enthoven. While at Stanford, he joins and serves as president of Stanford Disabled Students to discuss disability policy issues on campus. Batavia then completed his final year of law school at Stanford (1983-1984) while still receiving his law degree (JD) from Harvard in 1984.

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Initial career

Batavia's first job after law school was in the general advisory office of the Department of Health and Human Services (HHS), where he announced regulations, reviewed proposals, and filed lawsuits. After two years of working for HHS, he left and joined the National Rehabilitation Hospital (now Medstar) as director of health services research under Gerben Dejong in Washington, D.C. (1987-1989). In 1986-1987, he was funded as a member of the Mary E. Switzer Research and began his career as a health policy researcher, publishing, along with Gerben, in the field of rehabilitation.

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White House Fellowship

Batavia was one of the twelve White House Fellows selected for the period 1990-91. He served as special assistant to Attorney General Richard Thornburgh, writing the rules to streamline the implementation of America's Disabilities Act (ADA) 1990.

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Government jobs and policies

Following the WHF, Batavia accepted a position as senior staff in the Domestic Policy Council at the White House (1991-1992), under President George H. W. Bush, where he wrote a proposal for universal universal health care. In 1992, he served a year as director of research for disability and rehabilitation policy at ABT Associates, Inc., in Bethesda, Maryland (1992-1993) and later, he served as executive director of the National Council on Disability (1993). From 1993 to 1995, Batavia served as a legislative assistant to Senator John McCain of Arizona, where he focused on domestic economic and health policy issues.

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Miami Herald columnist

In 1992, Batavia and his old personal assistant, Cheryl Nicholson, married in their home in Washington, DC In 1995, they moved to Miami Beach, where Batavia wrote a column on disability issues for the Miami Herald >. They adopted Russian brothers and sisters, Joe and Katey, in 1996.

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Involvement in assisted debate

While working as an adviser at the law firm of McDermott Will & amp; Emery from 1995 to 1997, he filed a amicus report and served as a record lawyer to protect the rights of severely ill individuals and who wanted help to end their lives. Batavia served as legal counsel on a brief amici on behalf of Autonomy, Inc. in the United States Supreme Court case of Oregon v. Ashcroft in 2002, and in appeal to the Ninth Circuit Court of Appeals. He also serves as a record lawyer at a brief amici at Washington v. Glucksberg, and Vacco v. Quill before the US Supreme Court in 1996, as well as on a brief report amici for Krischer v. McIver at the Florida Supreme Court in 1997.

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Teaching university

Batavia joined Florida International University (FIU) in September 1997 as professor of law and health care policy (1997-2002) at the School of Policy and Management, whose main office is located on the Biscayne North Miami campus. There, he continues to publish articles and books of Self Lives: Options for Long Term Care , which illustrates three models of care for people with disabilities.

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Autonomy, Inc.

In 2002, he became president and co-founded with Hugh Gallagher, Autonomy, Inc., a nonprofit organization to represent disabled people wanting choice and control over their lives, including the option to end it for severely disabled people.

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Death

Batavia died at Jackson Memorial Hospital in Florida, on January 6, 2003, of sepsis, at the age of 45. His funeral was held a week later at the Beth Israel Memorial Chapel in Delray Beach. He was granted a tenure and posthumously promoted to full professor in January 2003.

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Memoir

By 2015, fourteen chapters from the unfinished history of Batavia are found on the hard drive. The family completed the memoir, which Batavia gave the title The Wisdom of the Chair . In the preface, Batavia wrote his life mission:

My mission in this world is to try to ensure that everyone, including the disabled, has greater choice and control over their lives. I believe that achieving this mission will make the world a slightly better place to be than before I get here. p. xvii


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References


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External links

America with Disability Act Program July 26, 1991 US Department of Justice Dick Thornburgh Papers http://digital.library.pitt.edu/cgi-bin/t/thornburgh/dtVideoPlayer?id=dtv182

Podcast "Of Wheelchairs and Managed Care" Health Affairs http://www.healthaffairs.org/podcasts/of-wheelchairs-and-managed-care-full-essay/

Source of the article : Wikipedia

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